On September 29th, 2020, Braysen was 18 weeks in utero and diagnosed with a 100 percent fatal condition called Bilateral Renal Agenesis (no kidneys present). The parents were only given two options: abortion or carry to term and have a stillborn birth. The parents would not accept either option and started diligently researching other courses of action. During their research, they found The Renal Anhydramnios Fetal Therapy (RAFT) Trial, a new study for babies diagnosed with Braysen’s condition and similar diagnoses. The RAFT Trial offers eligible pregnant women with a diagnosis of Early Pregnancy Renal Anhydramios (EPRA) an experimental therapy or repeated or serial “amnioinfusions” of fluid into the womb.

After undergoing 25 serial amnioinfusions (fluid injections into the womb), Braysen was born on January 21st, 2021. Even though Bilateral Renal Agenesis is considered 100 percent fatal, Braysen has defied the odds and is alive and thriving. He has undergone 14 surgeries, a stroke, and many other medical procedures, but he continues to persevere through them all. He is a living testimony and medical miracle that has provided unmatched inspiration to his family, caregivers, and we would love to share his journey to inspire other families to never give up!